This past week has been pretty rough. Last Monday, the tech that was setting me up for treatment didn't know that my dry weight was supposed to be bumped up a little bit. I had evidently gained a couple of pounds for the first time in a long long time, and the papers hadn't been updated to adjust my dry weight. Therefore, the tech put into the machine to take off more fluid than usual, which ended up taking off WAAAAAAAAAAAAY too much. This basically somewhat dehydrated me and threw my whole system off. I got a gigantic headache that I couldn't really do anything about since it wasn't anything medicine could fix, and I felt pretty crappy for the next few days. My blood pressure has been up since then and only really settled down yesterday and today, although it's back up a bit tonight. It should go down after the medicine kicks in. After feeling fine for so long, a week of feeling blah is pretty down in the dumps. Hopefully, I'll get to feeling back up to par in the next day or so.
Otherwise, no news really. Transplant financial stuff is still going through its process, as is Social Security / Disability.
By the way, I could always use someone to talk to, if anyone has spare time to give me a call. Not being able to work right now, and not having classes this semester, I get pretty bored. I'm free just about any time. (916) 960-9781.
Monday, February 21, 2011
Wednesday, February 2, 2011
Nuuzzzzzz
Yesterday, February 1st, 1 day less than 2 full months after the evaluation process, I found out some news.
I called the Transplant Coordinator but he evidently wasn't in his office. The receptionist asked why I was calling and said she was able to help me even though the coordinator wasn't there. She said they were waiting on a certain type of blood work. It turns out that it's the blood work I did last week and sent in. She said they had received it and that it would probably take up to two weeks for processing. The real news is that she said she was able to tell me that the transplant evaluation committee met and approved me to be eligible for listing. There's various little things I'll have to do, such as set up the financial stuff with MediCal, and do a monthly blood work which the staff at dialysis will take care of, but most of all, it's just waiting for a kidney now.
This is the news we've been waiting on for two months or more. I've been so worried that I wouldn't be eligible for some reason or another even though everyone told me I wouldn't have a problem with it. I'm so glad to get good news, but I think I'm somewhat in shock. I don't know if I don't believe it or what. I just feel all confused. I guess I worried about it for so long that having positive results is overwhelming.
Thank you so much everyone for all the support you've given me and my family through all of this. Major hurdle number 1 taken care of, moving on to step 2!
I called the Transplant Coordinator but he evidently wasn't in his office. The receptionist asked why I was calling and said she was able to help me even though the coordinator wasn't there. She said they were waiting on a certain type of blood work. It turns out that it's the blood work I did last week and sent in. She said they had received it and that it would probably take up to two weeks for processing. The real news is that she said she was able to tell me that the transplant evaluation committee met and approved me to be eligible for listing. There's various little things I'll have to do, such as set up the financial stuff with MediCal, and do a monthly blood work which the staff at dialysis will take care of, but most of all, it's just waiting for a kidney now.
This is the news we've been waiting on for two months or more. I've been so worried that I wouldn't be eligible for some reason or another even though everyone told me I wouldn't have a problem with it. I'm so glad to get good news, but I think I'm somewhat in shock. I don't know if I don't believe it or what. I just feel all confused. I guess I worried about it for so long that having positive results is overwhelming.
Thank you so much everyone for all the support you've given me and my family through all of this. Major hurdle number 1 taken care of, moving on to step 2!
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